Oral presentation: Esther Vermeulen
Realization of a cancer registry in the Dutch Caribbean countries and special municipalitiesOral presentation by Esther Vermeulen: Realization of a cancer registry in the Dutch Caribbean countries and special municipalities
Background: Cancer is a significant public health concern in the Caribbean, being the second leading cause of death. Despite this, the region lacks comprehensive cancer data, hindering efforts to combat cancer. Population-Based Cancer Registries (PBCRs) are critical for collecting data on cancer incidence and prevalence to implement effective health interventions. Therefore, this study assesses the feasibility of establishing a PBCR across the Dutch Caribbean (Aruba, Curaçao, Sint Maarten, Bonaire, Saba, and Statia).
Methods: A study was conducted in the Dutch Caribbean in 2024 to evaluate the feasibility of establishing a PBCR. Data were collected through structured interviews aligned with European Network of Cancer Registries and WHO guidelines, involving healthcare facilities and laboratories responsible for cancer diagnosis and treatment. Furthermore, assessments were performed covering technical, legal, financial and privacy considerations.
Results: Key findings indicate that while some islands, e.g. Curaçao and Aruba, have laid the groundwork for cancer registration, other islands do not, and gaps remain in legislative frameworks, data sharing and infrastructure. Based on study results, the PBCR system of the Netherlands Comprehensive Cancer Organization is best fitting. A robust legal framework, sustained financial support, and stakeholder collaboration are also key to the registry's success.
Conclusion: Implementing a PBCR is feasible, provided that a coordinated effort across the islands is made, with shared data management systems and financial resources. To proceed, governments in the Dutch Caribbean must secure formal approvals, establish a clear legal and financial framework, and engage stakeholders to drive the implementation of a PBCR.